More than 150 rare kidney diseases exist, and around 80% of them have a genetic origin. Naming them explicitly makes these patients visible to institutions, researchers and funders.
Read more in Why our name matters.
4 November 2025
Why our name says "rare or genetic"
Rare kidney diseases are not just a smaller slice of CKD. Here is why we name them explicitly.
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EKHA webinar: From Care to Cure
An EU-wide network advancing rare kidney disease healthcare and research, discussed by patients, clinicians and policymakers.
World Kidney Day 2026
Member associations across Europe marked World Kidney Day with awareness campaigns, family meetings and online talks.
FEDERG at the European Parliament: Safe Hearts, Safe Kidneys
Elevating kidney health on the EU agenda, with a clear message on early diagnosis and equal access to care.