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FEDERG
    • What we do
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    • Governance & statutes
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    • Strategic Plan 2026–2029
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  • Contact
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Useful links

Reference networks, patient organisations and trusted information on rare and genetic kidney diseases.

Policy

  • EKHAEuropean Kidney Health Alliance, bringing kidney health to the EU agenda.↗ (opens in a new tab)

Patient organisations

  • EKPFEuropean Kidney Patients' Federation.↗ (opens in a new tab)
  • EURORDISRare Diseases Europe, the alliance of rare disease patient organisations.↗ (opens in a new tab)
  • Rare Diseases InternationalThe global alliance of people living with a rare disease.↗ (opens in a new tab)

Professional societies

  • European Renal AssociationThe European society for nephrology professionals.↗ (opens in a new tab)
  • ESPNEuropean Society for Paediatric Nephrology.↗ (opens in a new tab)

Reference networks

  • ERDERAEuropean Rare Diseases Research Alliance, a partnership to speed up diagnosis and treatment research.↗ (opens in a new tab)
  • ERKNetThe European Rare Kidney Disease Reference Network, with up-to-date information for patients and clinicians.↗ (opens in a new tab)

Information

  • OrphanetReference portal for information on rare diseases and orphan drugs.↗ (opens in a new tab)
  • World Kidney DayGlobal awareness campaign held every second Thursday of March.↗ (opens in a new tab)

Practice project. This is a student redesign exercise and not the official FEDERG website. Content is for demonstration only and may be inaccurate. The official site is federg.org.

FEDERG

The federation of European associations of patients affected by rare and/or genetic kidney diseases.

About

  • What we do
  • Our members
  • Governance & statutes
  • Collaborations
  • Why our name matters
  • Strategic Plan 2026–2029

News & Events

  • News
  • Events
  • FEDERG representations
  • Members activities
  • Useful links
  • Patient stories

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© 2026 Practice redesign of the FEDERG website. Logo © FEDERG.

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